As medicine strives to provide person-centered care, it is essential that clinicians support the subjective well-being of people living with serious illness. Toward this end, addressing the subjective suffering of an individual is now recognized as complementary to medicine’s goals of treating disease. Joy, on the other hand, has generally fallen outside the purview of … Continue reading Joy, Suffering, and the Goals of Medicine
Medical Aid In Living
While in Colorado I worked with a number of persons living with neurologic illness who made the decision to utilize the Colorado End of Life Options act (Medical Aid in Dying - MAID). Even though I was in support of this option, I held many stereotypes about the people who made this decision. Once I … Continue reading Medical Aid In Living
Comparison of Integrated Outpatient Palliative Care With Standard Care in Patients With Parkinson Disease and Related Disorders
A Randomized Clinical Trial Is outpatient palliative care associated with improvements in patient or caregiver outcomes compared with current standards of care among persons with Parkinson disease and related disorders? In this randomized clinical trial of 210 patients with Parkinson disease and related disorders and 175 caregivers, patients receiving palliative care had better quality of … Continue reading Comparison of Integrated Outpatient Palliative Care With Standard Care in Patients With Parkinson Disease and Related Disorders
Palliative Care is About Living As Well As Possible for As Long As Possible
Published in 2018 in conjunction of when I spoke at the Third World Parkinson Congress in Montreal, Canada and the Fourth World Parkinson Congress in Portland, Oregon Before talking about palliative care, I would like to ask you to answer a few questions: How do you define living well?What makes life worth living?What events do … Continue reading Palliative Care is About Living As Well As Possible for As Long As Possible
