I’ve enjoyed writing and stories my whole life, but until recently, didn’t think that I had the talent or the time to commit to doing serious creative writing. I now see that writing is both a craft and an art, one that takes time and one that leads you into learning what you need to know if you are open to the process. I’m excited by the potential of using stories to influence people and culture. As my research and clinical career has veered further from traditional paths, I’m seeing the limitations of the academic medical paradigm in taking an observation to move standards of care. There are certain problems where doing research and publishing scientific manuscripts is absolutely essential, and the quickest way towards change. However, there are other situations–for example, helping both doctors and patients to drop the restrictions of their roles to have more meaningful and healing conversations–that may be best approached directly through the power of words, ideas, stories and metaphors.
How Finally Embracing Spirituality Made Me a Better Physician
This comprehensive guide thoroughly covers all aspects of neuropalliative care, from symptom-specific considerations, to improving communication between clinicians, patients and families. Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease addresses clinical considerations for diseases such as dementia, multiple sclerosis, and severe acute brain injury, as well discussing the other challenges facing palliative care patients that are not currently sufficiently met under current models of care. This includes methods of effective communication, supporting the caregiver, how to make difficult treatment decisions in the face of uncertainty, managing grief, guilt and anger, and treating the pain itself. Written by leaders in the field of neuropalliative care, this book is an exceptional, well-rounded resource of neuropalliative care, serving as a reference for all clinicians caring for patients with neurological disease and their families: neurologists and palliative care specialists, physicians, nurses, chaplains, social workers, as well as trainees in these areas.
Dangerous and Expensive Bullshit
Navigating Life with Neurologic Illness
From the Blog…
I knew June would be a change of pace as I would have my first week of vacation in over a year followed by a week as the on-call neurology attending for a busy hospital. However, as often happens just when I start to feel that I understand my life, June defied my expectations and […]
As you get more familiar with the concept and practice of the Medical Bullshit Detector (check out part I and part II), you will start to see that there is a lot of products and resources out there (books, supplements, news stories…) that smell like BS. Many times, simply knowing that something is likely BS […]
This week, under significant controversy, the FDA approved aducanumab, a medication to slow the progression of Alzheimer’s disease. If this were a straightforward drug approval, I would be among the first to celebrate. Alzheimer’s is a horrible illness and we desperately need better therapies to address its symptoms, slow its progression, and, ideally, cure or […]