I’ve enjoyed writing and stories my whole life, but until recently, didn’t think that I had the talent or the time to commit to doing serious creative writing. I now see that writing is both a craft and an art, one that takes time and one that leads you into learning what you need to know if you are open to the process. I’m excited by the potential of using stories to influence people and culture. As my research and clinical career has veered further from traditional paths, I’m seeing the limitations of the academic medical paradigm in taking an observation to move standards of care. There are certain problems where doing research and publishing scientific manuscripts is absolutely essential, and the quickest way towards change. However, there are other situations–for example, helping both doctors and patients to drop the restrictions of their roles to have more meaningful and healing conversations–that may be best approached directly through the power of words, ideas, stories and metaphors.
How Finally Embracing Spirituality Made Me a Better Physician
This comprehensive guide thoroughly covers all aspects of neuropalliative care, from symptom-specific considerations, to improving communication between clinicians, patients and families. Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease addresses clinical considerations for diseases such as dementia, multiple sclerosis, and severe acute brain injury, as well discussing the other challenges facing palliative care patients that are not currently sufficiently met under current models of care. This includes methods of effective communication, supporting the caregiver, how to make difficult treatment decisions in the face of uncertainty, managing grief, guilt and anger, and treating the pain itself. Written by leaders in the field of neuropalliative care, this book is an exceptional, well-rounded resource of neuropalliative care, serving as a reference for all clinicians caring for patients with neurological disease and their families: neurologists and palliative care specialists, physicians, nurses, chaplains, social workers, as well as trainees in these areas.
Dangerous and Expensive Bullshit
Navigating Life with Neurologic Illness
From the Blog…
In a recent blog, we reviewed the various agents of medical bullshit and hinted at the idea that much of medical bullshit is being run by big businesses (e.g. corporations). It’s ironic that a field that so often rails against The Establishment as part of its claim to legitimacy—whether that be in the form of […]
In the last blog, we looked at how the doctor-patient relationship is often built upon an arbitrary hierarchy where the doctor assumes a position of power and the patient one of submission. In Natural Causes: An Epidemic of Wellness, the Certainty of Dying, and Killing Ourselves to Live Longer, Barbara Ehrenreich further articulates this power […]
Photo from the blog Want Better Care? Stop Treating Your Doctor Like a God! by Kevin Swan A few years ago I got an email from a surgeon at an Ivy League medical school whose wife had a horrible neurodegenerative illness. His name was Dr. Knife. His wife’s illness was progressing and he was told […]