Please print out this checklist and use it as much as you find helpful.

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We have found that patients and their families can get more out of their visits with their local healthcare providers and with the study team if they take a little time to prepare for these visits. You can prepare for your visit by writing out a list of questions or concerns. For example, what has changed since you were last seen? What symptoms or issues are most bothersome to you? What questions do you wish you had the answers to? 

 

To help you prepare for your visits we created a checklist of common concerns as well as areas to write in your own questions and issues. 

 

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